Blog for Rare Disease – Unite Bloggers, World Rare Disease Day!!
BLOG for Rare Disease!
We want to unite bloggers to raise awareness and support for rare disease.
How can you help?
We need everyone – moms, dads, family, friends, medical bloggers, pharma bloggers – anyone with something to say about rare disease. There is no limit on the number of posts, the type of posts or the direction of thoughts and opinions.
If you would like to be a part of the first ever “Blog for Rare” project, email Catherine Calhoun at hellocatcal@gmail.com. Email your link by Friday, February 19, 2010 with subject line “Blog for Rare.”
“Blog for Rare” goes live on the Children’s Rare Disease Network blog, SNiPs, the week of World Rare Disease Day (February 28, 2010).
Everyone has heard of Tay-Sachs but there are eleven Ashkenazi Jewish Genetic Diseases that everyone should know about. I am a carrier of Familial Dysautonomia (FD), as common as Tay-Sachs (1:27)