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	<title>The Children&#039;s Rare Disease Network</title>
	<link>http://www.crdnetwork.org/blog</link>
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		<title>Malaria-free mosquitoes created</title>
		<description><![CDATA[In a study published last week, researchers demonstrate how to genetically alter mosquitoes so they no longer transmit the Plasmodium parasite, which causes malaria in humans.  ]]></description>
		<link>http://www.crdnetwork.org/blog/malaria-free-mosquitoes-created/</link>
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		<title>Pfizer&#8217;s Viagra Faces FDA Review for Use in Children With Lung Condition</title>
		<description><![CDATA[By Shannon Pettypiece and Molly Peterson &#8211; Jul 27, 2010 A form of Pfizer Inc.’s erection drug Viagra, sold as the blood-pressure treatment called Revatio in adults, may be used for children with a rare lung disorder if U.S. regulators can agree on how to test it. The condition, called pulmonary arterial hypertension, affects only [...]]]></description>
		<link>http://www.crdnetwork.org/blog/pfizers-viagra-faces-fda-review-for-use-in-children-with-lung-condition/</link>
			</item>
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		<title>NIH Takes On New Role in Fight Against Rare Diseases</title>
		<description><![CDATA[July 24, 2010 By AMY DOCKSER MARCUS A government program focusing on rare diseases has launched five pilot projects that are taking the National Institutes of Health in a new direction: developing drugs. The NIH Therapeutics for Rare and Neglected Diseases (TRND) program was established last year with $24 million of funding. TRND will work [...]]]></description>
		<link>http://www.crdnetwork.org/blog/nih-takes-on-new-role-in-fight-against-rare-diseases/</link>
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		<title>Be the Change in MN</title>
		<description><![CDATA[It seems as if I have been asked the question, &#8220;What do you do?&#8221; a lot lately.  So, I want to more clearly define what I hope to do through Be the Change.  Who knows, it might even be helpful in clarifying it for myself! In my efforts with Be the Change, I want to [...]]]></description>
		<link>http://www.crdnetwork.org/blog/be-the-change-in-mn/</link>
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		<title>Disability Pride Parade, a video.</title>
		<description><![CDATA[Caught this video on Saturday in Chicago at the Disability Pride Parade, http://www.youtube.com/watch?v=-EBR_CJz6EU. Just in time for the birthday of the Americans with Disabilities Act. // Catherine Calhoun]]></description>
		<link>http://www.crdnetwork.org/blog/disability-pride-parade-a-video/</link>
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		<title>The Tour de France and Testicular Cancer</title>
		<description><![CDATA[Testicular cancer is rare, and bone marrow transplant services are difficult to access for advanced stage tumors. ]]></description>
		<link>http://www.crdnetwork.org/blog/testicular/</link>
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		<title>First unified protocol to provide primary care to rare disease patients introduced in Spain</title>
		<description><![CDATA[The Spanish Society of Family and Community Medicine, has recently released an unified on-line protocol to improve the Primary Care for patients with Rare Diseases.]]></description>
		<link>http://www.crdnetwork.org/blog/first-unified-protocol-to-provide-primary-care-to-rare-disease-patients-introduced-in-spain/</link>
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		<title>Wanting What Others Got&#8230;</title>
		<description><![CDATA[The other day I attended an absolutely beautiful baby shower for a friend who will soon welcome a little girl into this world.  I had no expectation on how I would feel going to a baby shower, as this was my first one since my little boy died.  There is something about being in a [...]]]></description>
		<link>http://www.crdnetwork.org/blog/wanting-what-others-got/</link>
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		<title>Getting a prompt response in MN</title>
		<description><![CDATA[I was reminded this week of the extreme importance of a prompt response regarding test results and/or a call from a nurse or doctor.  Is it too much to ask, especially in this day and age of immediate response technology, that a patient wait more than 24 hours for health information, critical or not? We [...]]]></description>
		<link>http://www.crdnetwork.org/blog/getting-a-prompt-response-in-mn/</link>
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		<title>NORD Testifies Before Senate HELP Committee</title>
		<description><![CDATA[July 21, 2010 WASHINGTON DC &#8211; An advocate for people with rare diseases today told a U.S. Senate committee that the burden of funding and driving research on rare diseases too often falls upon patients and their families. “As a society, it is wrong for us to expect people with devastating diseases to fund the [...]]]></description>
		<link>http://www.crdnetwork.org/blog/nord-testifies-before-senate-help-committee/</link>
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