Meet Shefali J., Our first guest sibling blogger (age 7).

i have a brother named  shaan

he has a disabilty called joubertsyndrome

he cant walk he cant talk he cant see very well either

when he was born he had a little bit of  yellow on his skin.

he takes therapy he also loves toy with light and sound

and that about shaan what makes me sad about him is i wish he  didint have joubert syndrome

what makes me happy about him is i know that when i see some body with a problem i care a lot.

By Shefali J. (age 7)

“How To” – A Jean Ribbon for Global Rare Disease Day