"There are millions of children with rare diseases who have absolutely no where to turn for information or funding for therapies that are crucial for their development. The Project is a magnet and a long awaited home for these kids and their families. We don't have to feel so alone, The Project is on our side."

Kris Howsen, Moorea's mom, Williams Syndrome

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The Children's Rare Disease Network is a division of and developed by The R.A.R.E. Project, which exists to promote Rare disease Advocacy, Research & Education.
The R.A.R.E. Project is a non-profit 501(c)(3) corporation.