CHARITY SPOTLIGHT

The Charity Spotlight will be promoting a new charity regularly, by providing information about its mission, the disease that it represents and various resources affiliated with the disease and the organization.

SUPPORTLINK

Search Charities by Diseases:
# A B C D E F G H I J K L M N O P Q R S T U V W X Y Z | Other

CANAVAN DISEASE

Canavan Disease

National Tay-sachs & Allied Diseases Association, Inc. (ntsad)
http://www.ntsad.org


CARDIO-FACIO-CUTANEOUS

Cardio-facio-cutaneous

Cfc International
http://www.cfcsyndrome.org


CARDIOMYOPATHY

Cardiomyopathy

Children's Cardiomyopathy Foundation (ccf)
http://www.childrenscardiomyopathy.org


CAT-EYE SYNDROME

Cat-eye Syndrome

Chromosome 22 Central (c22c)
http://www.c22c.org


CAVERNOMA

Cavernoma

Angioma Alliance
http://www.angioma.org


CAVERNOUS ANGIOMA OF THE BRAIN AND SPINAL CORD

Cavernous Angioma Of The Brain And Spinal Cord

Angioma Alliance
http://www.angioma.org


CAVERNOUS HEMANGIOMA

Cavernous Hemangioma

Angioma Alliance
http://www.angioma.org


CENTRONUCLEAR MYOPATHY

Centronuclear Myopathy

Joshua Frase Foundation (jff)
http://www.joshuafrase.org


CEREBRAL CAVERNOUS MALFORMATION

Cerebral Cavernous Malformation

Angioma Alliance
http://www.angioma.org


CHARCOT-MARIE-TOOTH

Charcot-marie-tooth

Charcot-marie-tooth Association
http://charcot-marie-tooth.org

Hereditary Neuropathy Foundation, Inc.
http://www.hnf-cure.org


CHERUBISM

Cherubism

Fibrous Dysplasia Foundation
http://www.fibrousdysplasia.org/


CHILDHOOD CANCER

Childhood Cancer

Candlelighters Childhood Cancer Foundation (cccf)
http://www.candlelighters.org


CHORDOMA

Chordoma

Chordoma Foundation
http://chordomafoundation.org


CHROMOSOME 10

Chromosome 10

Distal Trisomy 10q Families
http://trisomy10q.darylanderson.com


CHROMOSOME 15Q DUPLICATIONS

Chromosome 15q Duplications

Ideas (isodicentric 15 Exchange Advocacy & Support) (ideas)
http://www.idic15.org


CHROMOSOME 16

Chromosome 16

Disorders Of Chromosome 16 Foundation
http://www.trisomy16.org


CHROMOSOME 22

Chromosome 22

Chromosome 22 Central (c22c)
http://www.c22c.org


CHROMOSOME 22Q

Chromosome 22q

Chromosome 22 Central (c22c)
http://www.c22c.org


CHROMOSOME 5P DELETION SYNDROME

Chromosome 5p Deletion Syndrome


CHROMOSOME 9

Chromosome 9

Chromosome 9p- Network
http://www.9pminus.org


CHROMOSOME 9P-

Chromosome 9p-

Chromosome 9p- Network
http://www.9pminus.org


CHROMOSOME ANOMALIES

Chromosome Anomalies

Distal Trisomy 10q Families
http://www.trisomy10q.darylanderson.com

Support Organization For Trisomy 18, 13 & Related Disorders (soft)
http://www.trisomy.org


CHROMOSOME DELETIONS

Chromosome Deletions

Chromosome Disorder Outreach, Inc. (cdo)
http://www.chromodisorder.org


CHROMOSOME DISORDERS

Chromosome Disorders

Chromosome Disorder Outreach, Inc. (cdo)
http://www.chromodisorder.org


CHROMOSOME TRANSLOCATIONS

Chromosome Translocations

Chromosome 9p- Network
http://www.9pminus.org


CHRONIC GRANULOMATOUS DISEASE

Chronic Granulomatous Disease

Chronic Granulomatous Disease Association, Inc. (cgda)
http://www.cgdassociation.org/


COCKAYNE SYNDROME

Cockayne Syndrome

Share And Care Cockayne Syndrome Network, Inc.
http://www.cockaynesyndrome.net/


COLOBOMA WITH MICROPHTHALMIA

Coloboma With Microphthalmia

International Children's Anophthalmia Network (ican)
http://www.anophthalmia.org

Micro & Anophthalmic Children's Society
http://www.macs.org.uk


CONGENITAL ADRENAL HYPERPLASIA

Congenital Adrenal Hyperplasia


CONGENITAL DISORDERS OF BLYCOSYLATION

Congenital Disorders Of Blycosylation

The Cdg Family Network
http://www.cdgs.com


CONGENITAL HEART DEFECTS

Congenital Heart Defects

Mowat-wilson Syndrome Support Group
http://www.mowatwilsonsyndrome.org.uk


CONGENITAL HYPERINSULINISM

Congenital Hyperinsulinism

Congenital Hyperinsulinism International
http://www.congenitalhi.org

The Children's Hyperinsulinism Fund
http://www.hi-fund.org


CONGENITAL MUSCULAR DYSTROPHY

Congenital Muscular Dystrophy


CONGENITAL MYASTHENIC SYNDROME (SMS)

Congenital Myasthenic Syndrome (sms)


CONGENITAL MYOPATHY

Congenital Myopathy

Joshua Frase Foundation (jff)
http://www.joshuafrase.org


CORNELIA DE LANGE SYNDROME

Cornelia De Lange Syndrome

Cornelia De Lange Syndrome Foundation, Inc
http://www.cdlsusa.org


CORPUS CALLOSUM ABNORMALITIES

Corpus Callosum Abnormalities

Mowat-wilson Syndrome Support Group
http://www.mowatwilsonsyndrome.org.uk

National Organization Of Disorders Of The Corpus Callosum
http://www.nodcc.org


COSTELLO SYNDROME

Costello Syndrome

Costello Syndrome Family Network (csfn)
http://www.costellokids.co.uk


CRANIOFACIAL CONDITIONS

Craniofacial Conditions

Children's Craniofacial Association
http://www.ccakids.org

Cleft Palate Foundation
http://www.cleftline.org

Craniofacial Foundation Of America
http://www.craniofacialfoundation.org


CRI DU CHAT SYNDROME

Cri Du Chat Syndrome


CROHN DISEASE

Crohn Disease

American Autoimmune Related Diseases Association, Inc.
http://www.aarda.org


CUTIS LAXA

Cutis Laxa

Cutis Laxa Internationale
http://www.orpha.net/nestasso/cutislax


CYSTIC FIBROSIS

Cystic Fibrosis

Cystic Fibrosis Foundation
http://www.cff.org


CYSTIC HYGROMA

Cystic Hygroma

Lymphatic Research Foundation
http://www.lymphaticresearch.org


CYSTINOSIS

Cystinosis

Cystinosis Research Foundation - Natalie's Wish
http://www.natalieswish.org/


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The Children's Rare Disease Network is a division of and developed by The R.A.R.E. Project, which exists to promote Rare disease Advocacy, Research & Education.
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