RARE DISEASE CHAMPIONS
The Children's Rare Disease Network would like to recognize those organizations that are working to ‘Make A Difference’ in all aspects of rare disease. We support and commend their efforts as they work to affect change, create awareness, impact policy and support families affected by rare disease.
PARTNERS
The Children's Rare Disease Network would like to recognize those organizations that we have built partnerships with. Working together with one common goal, to make a difference i n the lives of children and their families affected by rare disease!
ACCESS EXECUTIVE NETWORK
Info coming soon...
AT CHILDREN'S PROJECT
The A-T Children's Project is a non-profit organization that raises funds to support and coordinate first-rate biomedical research projects, scientific conferences and a clinical center aimed at finding a cure or life-improving therapies for ataxia-telangiectasia, a lethal genetic disease that attacks children, causing progressive loss of muscle control, immune system problems, and a strikingly high rate of cancer, especially leukemia and lymphoma.
CALIFORNIA HEALTHCARE INSTITUTE
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CERNER
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CORCEPT THERAPEUTICS
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CHARLESTON ORWIG
A proud partner with The Children’s Rare Disease Network, Charleston|Orwig is committed to using strategic marketing communications to help make a difference in the lives of those affected by rare diseases.
CURE DUCHENNE
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ECHO MEDIA GROUP
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FIBROUS DYSPLASIA FOUNDATION
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GENZYME
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HARBOR COURT HOTEL
A proud supporter of The Project – The Children’s Rare Disease Network, The Harbor Court Hotel, San Francisco's premier waterfront boutique hotel, combines the energy of the Financial District with the style of South of Market, right on the edge of the San Francisco Bay. Located on San Francisco's Embarcadero, our hotel is just steps away from the Ferry Building Marketplace, six blocks to AT&T Park or Moscone Convention Center, and offers easy access to Union Square or North Beach. The Harbor Court offers the style and energy you expect from a San Francisco luxury hotel. Part of Kimpton Hotels, where every hotel tells a story.
HIDE AND SEEK FOUNDATION
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HUNTINGTON'S DISEASE SOCIETY OF AMERICA
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JOUBERT SYNDROME FOUNDATION
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KAKKIS EVERYLIFE FOUNDATION
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LIFE TECHNOLOGIES FOUNDATION
The Life Technologies Foundation is dedicated to recognizing the power of each scientist's contribution to improving the human condition.
LOCAL.COM
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NATIONAL MARFAN FOUNDATION
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NB ALLIANCE
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THE NICHOLAS CONOR INSTITUTE
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NATIONAL NIEMANN-PICK DISEASE FOUNDATION INC.
The National Niemann-Pick Disease Foundation is a non-profit [501(c)(3)] organization that supports and promotes research to find treatments and a cure for all types of Niemann-Pick Disease, and provides support services to individuals and families affected by the disease. Our Vision is a world where Niemann-Pick Disease is no longer a threat to a full and productive life for patients and their families.
ORPHANET
Orphanet is a database of information on rare diseases and orphan drugs for all publics. Its aim is to contribute to the improvement of the diagnosis, care and treatment of patients with rare diseases. Orphanet includes a Professional Encyclopaedia, which is expert-authored and peer-reviewed, a Patient Encyclopaedia and a Directory of expert Services. This Directory includes information on relevant clinics, clinical laboratories, research activities and patient organisations.
RARE DISEASE FOUNDATION
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RUSSEL-SILVER SUPPORT
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SAVE BABIES THROUGH SCREENING FOUNDATION, INC.
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SYNDROMES WITHOUT A NAME
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SHIRE
To be as brave as the people we help.
