PRESS

Help Children With Rare Diseases Get the New Medicines They Need

July 5, 2011

RemedyMD and the Children’s Rare Disease Network Announce Plan to Give Away Free Rare Disease Research Registry Valued up to $50,000 via Contest

February 25, 2011

7,000 Bracelets for Hope™ Campaign Raises Awareness For Over 7000 Rare Diseases

February 08, 2011

Global Genes Project Announces "Wear That You Care!™" Denim Awareness Camaign for Rare Disease Day 2011

January 26, 2011

Thumbelina Kids: Tiny as Dolls, They Strive to Fit In

January 18, 2011

2010 ROCK STARS OF SCIENCE!" DR. EMIL KAKKIS HONORED AS A 2010 ROCK STAR OF SCIENCE

November 17, 2010

7,000 Bracelets For Hope™ - A Rare Disease Awareness Campaign

November 1, 2010

Global Genes Quarterly Conference Call Overview

October 28, 2010

Seeking A Cure For Jonah

October 19, 2010

The Global Genes Project Charity Benefit and Fashion Week Kick Off!

September 7, 2010

Advocates to bring rare disease philanthropy under one umbrella

August 9, 2010

Big pharma moves from 'blockbusters' to 'niche busters'

August 9, 2010

Pfizer's Viagra Faces FDA Review for Use in Children With Lung Condition

July 27, 2010

NIH Takes On New Role in Fight Against Rare Diseases

July 24, 2010

NORD Testifies Before Senate HELP Committee

July 21, 2010

A Great Win for Rare Diseases in U.S. Senate Appropriation Bill

July 15, 2010

Regulatory Flexibility

July 02, 2010

Children's Rare Disease Network Partners With Medpedia.com To Create Rarespace

June 29, 2010

FDA Database Aims to Spark Orphan-Disease Drug Development

June 18, 2010

EXCLUSIVE: Pfizer plans to move fast on rare disease pacts

June 17, 2010

Good news for rare disease?

June 15, 2010

THE CHILDREN'S RARE DISEASE NETWORK LAUNCHES VALUABLE INFORMATIONAL BLOG

June 9, 2010

FDA Grants Orphan Drug Status For Cyclodextrin Compound To Treat Fatal Genetic Cholesterol Disease

May 17, 2010

Genetic Sequencing Kit Catches Rare Mutation for TARP Syndrome

May 15, 2010

Parents of child with rare illness aim to help

April 26, 2010

AltheaDx and The Nicholas Conor Institute for Pediatric Cancer Research Announce Molecular Diagnostics Collaboration to Improve the Diagnosis and Treatment of Childhood Cancer

April 19, 2010

Cooking with the Genzyme Recipe: New Players Funding Rare Disease Drugs in Boston

April 12, 2010

PhRMA Honors Patient Advocates Ron and Raychel Bartek

March 18, 2010

A Legacy For and Beyond Batten Disease

March 16, 2010

Study opens new avenue for developing treatments for genetic muscle-wasting disease

March 15, 2010

Novato's BioMarin finds niche and growing quickly

March 13, 2010

First whole genome sequencing of family of 4 reveals new genetic power

March 10, 2010

Push to Cure Rare Diseases

March 10, 2010

NIH-Funded Research Study

March 8, 2010

250 Million People Worldwide Estimated to Suffer From Rare Disease

March 8, 2010

GENE THERAPY REVERSES EFFECTS OF LETHAL CHILDHOOD MUSCLE DISORDER IN MICE

February 28, 2010

CHI SUPPORTS RESEARCH AND HOPE FOR PATIENTS OF RARE DISEASES

February 25, 2010

RARE DISEASE ADVOCATES UNITE TO TRANSLATE SLOGAN OF GLOBAL GENES PROJECT IN TIME FOR WORLD RARE DISEASE DAY!

February 25, 2010

reco® jeans SUPPORTS CHILDREN WITH RARE DISEASES

February 23, 2010

MILLIONS AROUND WORLD TO OBSERVE RARE DISEASE DAY ON SUNDAY

February 23, 2010

GLOBAL GENES PROJECT TO RAISE AWARENESS FOR MILLIONS OF CHILDREN LIVING WITH RARE DISEASE

February 1, 2010

GALAPAGOS TO FOCUS ON RARE DISEASES IN STRATEGIC SHIFT

January 26, 2010

THE PATIENT ASCENDANT

January 18, 2010

FUTURE OF NEWBORN SCREENING ENVISIONED: PROCEEDINGS NOW VIEWABLE ONLINE

January 7, 2010

HUNTING NEWBORN TESTS FOR SUPER-RARE GENE DISEASES

January 5, 2010

THE LONELINESS OF FIGHTING A RARE CANCER

January 5, 2010

DONATE GAMES CHARITY CONNECTS COMMUNITIES WORLDWIDE

December 21, 2009

DONATEGAMES TURNS USED VIDEO-GAMES INTO FUNDING FOR MEDICAL RESEARCH TO HELP KIDS

November 25, 2009

CHILDREN'S RARE DISEASE NETWORK RECEIVES LIFE TECHNOLOGIES FOUNDATION GRANT

November 17, 2009

BABY Z CURED OR RARE DISEASE IN 3 DAYS

November 11, 2009

SOCIAL NETWORKING SAVIORS: TWITTER, FACEBOOK USED IN EFFORT TO HELP SAVE A BABY'S LIFE

October 29, 2009

U.S. AND EUROPEAN RARE DISEASE ORGANIZATIONS SIGN STRATEGIC ALLIANCE

October 28, 2009

RARE DISEASE CENTER HOSTS SYMPOSIUM ON NEW STRATEGIES

October 27, 2009

RARE FIND

October 23, 2009

NEW FDA GROUPS FOR RARE, NEGLECTED DISEASES COULD SPEED PATH TO MARKET

October 12, 2009

ARNOLD NATIVE TO RUN ACROSS SAHARA DESERT

August 18, 2009

CAMP SUNDOWN SHINES IN THE BRONX

August 13, 2009

RESEARCHERS IDENTIFY NEW FUNCTION FOR PROTEIN MISSING IN DUCHENNE MUSCULAR DYSTROPHY

August 4, 2009

AMERICANS STRUGGLE TO PAY FOR HEALTHCARE: STUDY

June 22, 2009

DEAL REACHED TO CUT DRUG COSTS

June 20, 2009

ONE GIRL'S HOPE, A NATION'S DILEMMA

June 14, 2009

IN RARE DISEASE, A FAMILIAR PROTEIN DISRUPTS GENE FUNCTION

May 26, 2009

NEW INSTITUTE WILL STUDY RARE DISEASE

May 20, 2009

UNC-DUKE STUDY: IMPAIRED BRAIN PLASTICITY LINKED TO ANGELMAN SYNDROME LEARNING DEFICITS

May 10, 2009

TO MAKE PROGRESS IN RARE CANCERS, PATIENTS MUST LEAD THE WAY

May 9, 2009

MO. VOTES TO ADD 5 DISEASES TO NEWBORN SCREENINGS

May 9, 2009

SIGNATURE GENOMIC LABORATORIES DETECTS CHROMOSOME ABNORMALITIES IN INDIVIDUALS WITH PALLISTER-KILLIAN SYNDROME WITHOUT INVASIVE SKIN BIOPSY

May 7, 2009

MIRACLE FOR MATTHEW

May 5, 2009

SHRINKING BABY MAGGIE AGNEW BAFFLES DOCTORS

May 4, 2009

reco® jeans SUPPORTS CHILDREN WITH RARE DISEASES

Children's Rare Disease NetworkCompany Partners with the Global Genes Project to Create Unique Blue Jeans Ribbon from Recycled Denim Material for Spring/Summer 2010

NEW YORK - February 23, 2010 - reco® jeans (www.recojeans.com), the leading manufacturer of true recycled denim jeans, today announced the company will create a special denim ribbon in support of the Global Genes Project (www.globalgenesproject.org), an initiative designed to raise awareness about the prevalence of rare diseases that afflict millions of children worldwide.

Using the official Global Genes Project blue jeans ribbon as inspiration, reco® jeans fashion designers will create a blue jeans ribbon from the company’s recycled denim material. reco® jeans recycled denim jeans ribbon will be launched at the company’s upcoming 2010 spring/summer project. All proceeds from the recycled denim jeans ribbon will go to support children suffering from chronic and life threatening rare illnesses.

“When we first heard about the Global Genes Project and the idea behind a denim jeans ribbon to represent millions of children afflicted by rare diseases, the story touched our hearts,” said Tom Cards, CEO, reco® jeans. “It’s astounding how many children are affected by rare diseases and how little the general public knows of this community. We are proud to be part of this global awareness initiative and we hope others will join us in giving back to kids and families facing rare diseases.”

reco® jeans eco-friendly recycled denim fabric has been approved and certified by the Hong Kong Green Council and is pending certification from a number of US organizations. The company’s fabric is comprised of mixed materials collected from scraps of cut and sew pieces that normally would end up in landfills. reco® jeans takes the idea behind green clothing to a new level and the company’s fabric is currently being studied by a prestigious University as an option to eliminate waste within the garment industry.

“reco® jeans has always been an innovative company with the goal of creating a healthier planet,” said Nicole Boice, founder, Global Genes Project. “We are thrilled reco® jeans is joining forces with us to help find treatments and cures for rare diseases and we look forward to seeing the unique twist they will add to the blue ribbon using their recycled denim material.”

To further raise funds and awareness in the fight against rare diseases, reco® jeans is organizing a charity event to support the Global Genes Project. Company employees will also be wearing and distributing handmade denim jeans ribbons to the public leading up to World Rare Disease Day on February 28, 2010. World Rare Disease Day is an event designed to call attention to the global public health issues associated with the 7000 rare diseases affecting nearly 30 million Americans and countless others worldwide.

For those interested in attending or participating in the reco® jeans charity event, please visit www.recojeans.com. For more information about reco® jeans or its efforts to support children with rare diseases, please contact natalie@recojeans.com.

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