RARE DISEASE CHAMPIONS

The Project would like to recognize those organizations that are working to ‘Make A Difference’ in all aspects of rare disease. We support and commend their efforts as they work to affect change, create awareness, impact policy and support families affected by rare disease.

STAY INFORMED

Thank you for your interest in joining the Children's Rare Disease Network. Please fill out the relevant information below and you will be kept up to date on announcements, news, events and new initiatives related to our rare disease community. Thank you!

* required
Parent's First Name: *
Parent's Last Name: *
Email Address: *
Address:
City:
State:	--United States-- Alabama Alaska American Samoa Arizona Arkansas California Colorado Connecticut Delaware District of Columbia Florida Georgia Guam Hawaii Idaho Illinois Indiana Iowa Kansas Kentucky Louisiana Maine Maryland Massachusetts Michigan Minnesota Mississippi Missouri Montana Nebraska Nevada New Hampshire New Jersey New Mexico New York North Carolina North Dakota Ohio Oklahoma Oregon Pennsylvania Puerto Rico Rhode Island South Carolina South Dakota Tennessee Texas Utah Vermont Virgin Islands Virginia Washington West Virginia Wisconsin Wyoming --Canada-- Alberta British Columbia Manitoba New Brunswick Newfoundland North West Territory Nova Scotia Nunavut Ontario Prince Edward Island Quebec Saskatchewan Yukon Territory Not Applicable
Zip Code:
If Parent of child(ren) with rare disease/disorder please fill out the child information below:
Child 1 Date of Birth
Child 1 Male or Female
Child 1 Category of Disease
Examples of Disease Categories: Cardiac, Genetic, Hematologic, Lysosomal Disorder, Metabolic, Mitochondrial Disease, Neurological, Oncologic
Child 2 Date of Birth:
Child 2 Male or Female
Child 2 Category of Disease
Child 3 Date of Birth
Child 3 Male or Female
Child 3 Category of Disease
Would you be interested in receiving news and updates from the Children's Rare Disease Network?
Would you be interested in being contacted by other rare disease families?

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PARTNERS

IN KIND SUPPORT