Rare Disease Collaboration

RareSpace is a collaborative project to share and advance knowledge about rare diseases among medical professionals, researchers, patients, parents, advocates and the general public Learn more.

Rare Disease Collaboration
Connecting Children with Rare Disease
Blog

Rare Disease CommunityJoin our blog, hear from other parents and rare disease experts. We encourage your involvement and comments.
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Family Stories

Rare Disease CommunityContribute and Share, Stories Photos & Videos. Click here >>

Parent Advocacy Program

Philanthropy | Rare Diseases | Children Disease | Genetic Diseases | Children's Rare Disease NetworkWe need your help! Play an active role within the rare disease community Click here >>

Rare Disease Community
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Educating Parents of Children with Rare Disease
Resources

Rare DIsease CommunityProviding you with a variety of tool kits, programs and links, helping you find relevant information more quickly. Click here >>

Rare Disease Search Database

Rare Disease SearchHelping you find disease specific information faster. Search by disease, orphan drug and symptom.
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FEATURED PODCAST:
Rare Disease EducationHey Now, You're a Rock Star
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Latest News From The Children's Rare Disease Network

January 25, 2012

RARE Charities Unite Worldwide to Fund Research for Rare Disease

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January 24, 2012

Sempra Energy Foundation Encouraging Volunteerism and support of rare disease!

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January 19, 2012

GUEST BLOG: A special collaboration among the RARE Project, Grand Rounds, and The Afternoon Nap Society

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January 18, 2012

CNN Health – Mom claims in viral blog that disabled child denied transplant

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The Children's Rare Disease Network is a division of and developed by The R.A.R.E. Project, which exists to promote Rare disease Advocacy, Research & Education.
The R.A.R.E. Project is a non-profit 501(c)(3) corporation.